In Observance of World Rare Disease Month Through March, Take the ‘Blindfold Breakfast’ Challenge

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What is your most difficult morning challenge? Choosing your outfit for the day? Getting the kids ready for school? Trying not to hurt your arm as you sling the alarm clock across the room?

Beginning Feb. 29, designated World Rare Disease Day because it’s the rarest day of the year, and through March, Rare Disease month, we challenge you to eat your breakfast — even if it’s just a bowl of cereal — while wearing a blindfold.

Why, you ask? Sofia Sees Hope, a nonprofit organization dedicated to raising awareness of rare inherited retinal diseases, wants you to challenge yourself to experience just one simple meal without the use of your sight. This is what life is like every day for someone suffering from a rare inherited retinal disease.

Join hundreds of other families, schools, children and celebrities to show us how well you eat your breakfast blindfolded – and then challenge five of your friends! Take a video, take a photo, take a selfie of your experience and share it on social media with the hashtag #blindfoldbreakfast.Sofia Sees Hope will grab the best and share them. Learn more at http://www.blindfoldbreakfast.org/

Sofia Sees Hope is inspired by a young teen with a rare inherited retinal disease who hopes to someday be able to see the stars at night. The organization is dedicated to making this possible for all those affected by blindness caused by Leber Congenital Amaurosis and other rare inherited eye diseases. The organization does this by raising funds for:

  • Research into treatments and cures
  • Patient support for diagnosis and treatment
  • Patient and medical community education and outreach
  • Public awareness of inherited retinal disease and treatments

If the Blindfold Breakfast experience inspires you to change someone’s future, visit www.sofiaseeshope.org to make a donation. Follow Sofia Sees Hope on Facebook (https://www.facebook.com/sofiaseeshope/) and Twitter (https://twitter.com/SofiaSees)

Lyme P & Z Hosts Public Hearing on Zoning Regulation Amendments

Grape-picking at Sunset Hill Vineyard. On Monday evening, Lyme's Planning and Zoning Commission will consider amendments to its zoning regulations addressing wineries, along with farms and agriculture.

Grape-picking at Sunset Hill Vineyard in Lyme. On Monday evening, Lyme’s Planning and Zoning Commission will consider amendments to its zoning regulations addressing wineries, along with farms and agriculture. Photos by Frank Cabb.

Next Monday, Feb. 29, Lyme Planning and Zoning (P & Z) Commission will host the Public Hearing/Regular Meeting that was previously scheduled for Feb. 8, but had to be cancelled due to the snowstorm that day.  The Feb. 29 meeting will be held at Lyme Consolidated School starting at 7:30 p.m.

The agenda opens with an application by Richard and Kathleen Pfannenstiel for a special permit to construct a boat dock at 65 Cove Rd. in Outer Hamburg Cove, for which there will be first a Public Hearing, and then the application will be considered in the Commission’s Regular Meeting.

But the part of the meeting almost guaranteed to draw a large crowd comes in the next agenda item when the P & Z Commission considers, “Proposed changes to the Lyme Zoning and Subdivision Regulations, which address principally farms, agriculture and farm wineries.” These have been published on the Town’s website at this link.

Lyme’s Zoning Enforcement Officer Bernie Gigliotti explained to LymeLine.com that the Commission has been talking about updating the regulations for a couple of years.  He noted that some two years ago the Town of Lebanon had introduced new regulations to protect and enhance farms and farming, and consequently the Town of Lyme “had been talking about making changes [to its own] regulations ever since.”

Gigliotti commented, however, that the event which really “triggered the action” was the application by the owners of Sunset Hill Vineyard in Lyme for a Special Exception Permit to offer tastings and sell wine at its Elys Ferry Rd. farm.  When the P & Z Commission discussed the application back in November last year, more than 175 residents attended the hearing, but the Commission did not end up rendering a decision on the vineyard’s application.  Gigliotti explained that the reason no decision was taken was many of the speakers — both for and against the proposal —  contended that the Town’s zoning regulations needed to be updated before the application could be considered.

Gigliotti, who freely admitted, “Our regulations were very deficient in how we treated vineyards,” described the combination of circumstances as “A Perfect Storm” in terms of providing a catalyst to move forward with the process of updating the regulations. When the P & Z Commission agreed at the end of the November Public Hearing that the update should be done as soon as possible, vineyard owners Matt Caruso and Donna Moore withdrew their application to await the revision.

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At Monday night’s P & Z meeting, the Commission will first host a Public Hearing on the proposed amendments to the Town’s zoning regulations.  Speakers for and against the proposal can again be expected since Laura and Kieran Mooney, who live immediately opposite Sunset Hill Vineyard, had issued a statement on behalf of the Lyme Rural Protection Group (LRPG) prior to the postponed Feb. 8 meeting.  The statement said in part, “We do not encourage the re-zoning of residential areas to permit commercial and retail enterprises nor do we support tourism … the group opposes several of the proposed changes and additions to the Town of Lyme Zoning Regulations as they have been currently drafted because we believe that they will fundamentally change the character of the town.”

Gigliotti commented to LymeLine.com that if the changes to the regulations are approved by the Commission Monday evening, Sunset Hill Vineyard will then be able to re-apply for a Special Exception Permit.  He noted the regulations will then be in a much improved form to deal with the application and that the issue seemed to have come down to the sale of wine on the premises. Gigliotti said, “People don’t seem to have a problem with them making wine.”

Those objecting to the proposal contend that it will be allowing a retail business in a part of town that is now solely residential and farming in character, while vineyard supporters have argued that Lyme has successfully retained its rural identity in part precisely because it has encouraged farming enterprises.

Caruso, who moved to Lyme in 1974, told LymeLine.com that selling wine has always been part of the business plan to make the vineyard viable.  He stressed the vineyard would not be hosting weddings, accommodating buses nor opening a café and that tastings will be restricted to ‘Appointment Only’ events from May to October and occasional holidays.

One of the vineyard’s most vocal supporters and a farm owner himself is Chip Dahlke of Ashlawn Farm on Bill Hill Rd. in Lyme. He wrote in a Facebook post prior to the cancelled Feb. 8 meeting, “The Town of Lyme has rewritten its regulations to allow vineyards to operate within the town.  I urge everyone to attend this meeting and support the change of regulations.”  Dahlke continued, “[It] is important to keep the town open for agriculture and maintain its character, not simply to be another elitist community along the shoreline.”

Gigliotti noted that an “overwhelming” number — 91 percent — of respondents to the survey related to the 2014 Lyme Plan of Conservation and Development (POCD) were “in favor of promoting and enhancing farms and farming in Lyme.”  He commented that operating a farm requires generation of income and is not something done for “altruistic value.”

The LRPG also cited the POCD in their statement saying, “We would encourage the town to maintain those regulations that currently support farming, agriculture and open spaces,” but points out, “[The POCD] discourages tourism and the development of commercialism, including retail, outside the existing commercially zoned areas in Hamburg and Hadlyme such as those proposed by the change in regulations.”

Gigliotti said he did not know whether the Commission would hold a vote on whether to approve the regulations at next Monday’s meeting.  He said the Commission could vote, but that decision would likely depend on members’ reactions to comments from the public.

 

Our ‘Movie Man’ Correctly Predicts DiCaprio to Win Academy Award for “The Revenant”

therevenant10For the love of all that is good and holy in this world, give Leonardo DiCaprio his long-overdue Academy Award!

This was all I was thinking as I sat through Alejandro González Iñárritu’s new film, The Revenant. Apart from the infinite number of beautiful shots depicting the American West through virtually all climates, my attention was fixed on the memorable performance of its lead, our boy Leo. This is not the Leo from post-Titanic Leo-mania, whom my cousins fell in love with and helped contribute to James Cameron’s romantic drama’s reigning status as the highest grossing film of all time until 2010.

This is a gritty and horrific depiction of a man who survives a brutal bear attack and must endure the cold of winter in order to trek across the wilderness in order to fulfill a quest for revenge on John Fitzgerald, played by Tom Hardy, who decided to leave him for dead.

This is a memorable performance on DiCaprio’s part. And while its acclaim may not be based in eloquent command of speech, as legendary Shakespearean actors like Olivier, McKellen, Gielgud, or the chilling sophistication of Anthony Hopkins as the cannibalistic serial killer, Dr. Hannibal Lecter, DiCaprio’s run as Hugh Glass will forever be etched into our minds due to his conveyance of pain. Foaming at the mouth, shouting through his teeth and unable to make intelligible sounds, lighting gunpowder in an open wound on his neck in order to clot the bleeding, this man, we must believe, truly did survive a bear attack. There is no question.

In fact, he does not speak much throughout the movie as he journeys back home. On top of (spoiler alert) pulling a move in which he imitates Han Solo providing a seriously injured Luke Skywalker shelter in a dead tauntaun in The Empire Strikes Back … give him the Oscar right now!

Another performance that must be recognized is that of Englishman Tom Hardy, who takes on a Southern accent and ultimately gives it a creepy delivery, reminding us of the yokels seen in Deliverance or Errol Childress in the first season of True Detective. Hardy has also lent his unique voice to another character best remembered for his speech, the villain Bane in The Dark Knight Rises. It is as if the lack of speech on DiCaprio’s part is made up for by Hardy’s yokel delivery.

My complaint about this film is the depiction of Glass’ journey back to his home fort is a bit dragged out at times, and could have been cut shorter.

Award season is approaching us, and DiCaprio has already won a Golden Globe and a Screen Actors Guild Award, and he has received his fifth acting-based Academy Award nomination, having already lost to Tommy Lee Jones, Jamie Foxx, Forest Whitaker, and Matthew McConaughey. And we have all seen the internet memes poking fun at his losses, such as placing his head on Mr. Turner in a memorable scene from The Fairly Odd Parents, and losing to Jennifer Lawrence despite being the only listed candidate for an award. Another meme came forward that was not connected to his snubs, but depicted his audience with Pope Francis, in which the Pontiff tells him that he was rooting for the bear earlier in the movie.

Iñárritu may also have a great chance to win his second consecutive Best Director Oscar, having last year won for Birdman. Nobody can argue with his ability to depict the American pioneer life, as well as masterfully paint the picture of Glass’s revenge. But even if Iñárritu wins again, his victory will definitely be overshadowed by the anticipation of Leonardo DiCaprio, one of the finest living actors of our generation.

Kevin Ganey

Kevin Ganey

About the Author: Kevin Ganey has lived in the Lyme/Old Lyme area since he was three-years-old, attended Xavier High School in Middletown and recently graduated from Quinnipiac University with a degree in Media Studies. Prior to his involvement here at LymeLine.com, he worked for Hall Radio in Norwich, as well as interned under the Director of Communications at High Hopes Therapeutic Riding Center. Kevin has a passion for movies, literature, baseball, and all things New England-based … especially chowder.

Social Security Tips: Use Your Extra Day to Leap Into Retirement

It’s leap year and that means one thing – you can add one extra calendar day to your February schedule. Many people are preparing for the upcoming elections. Others might be getting a jump on spring cleaning. What will you do with your extra day?

You could use a few of your extra minutes to check out what Social Security offers at  www.socialsecurity.gov/onlineservices. There, you can:
*       Apply for retirement, disability, and other benefits;
*       Get your Social Security Statement;
*       Appeal a recent medical decision about your disability claim;
*       Find out if you qualify for benefits;

If you’re planning or preparing for retirement, you can spend a fraction of your extra 24 hours at my Social Security. In as little as 15 minutes, you can create a safe and secure my Social Security account. More than 21 million Americans already have accounts. In fact, someone opens one about every 6 seconds. Join the crowd and sign up today at www.socialsecurity.gov/myaccount. With a personalized my Social Security account, you can:

*       Obtain an instant, personalized estimate of your future Social Security benefits;
*       Verify the accuracy of your earnings record – your future benefit amounts are based on your earnings record;
*       Change your address and phone number, if you receive monthly Social Security benefits;
*       Sign up for or change direct deposit of your Social Security benefits;
*       Get a replacement SSA-1099 or SSA-1042S for tax season; and
*       Obtain a record of the Social Security and Medicare taxes you’ve paid.

And if you have a little time to spare, you can always check out the agency’s blog, Social Security Matters, at blog.socialsecurity.gov. There, you will find guest posts by Social Security experts, in-depth articles, and answers to many of your questions about retirement, benefits, and healthcare. Each post is tagged by topic so you can easily search for what matters most to you.

Leaping from webpage to webpage, you can easily see that Social Security has you covered all year long, not just on that extra day in February.Remember, you can access the Social Security homepage that links to a wide array of online services any day of the week at www.socialsecurity.gov.

Editor’s Note: The author Robert G. Rodriguez is a Social Security Public Affairs Specialist in New Britain , CT

Author Presents ‘Roots of the Republic: Revolutionary Trees and the Birth of America,’ March 7

Eric-Rutkow-Jacket-199x300On Monday, March 7, at 2 p.m. in Essex Town Hall, the Essex Land Trust and the Essex Garden Club will be jointly hosting a lecture by author Eric Rutkow, whose book “American Canopy: Trees, Forests, and the Making of a Nation” tells the extraordinary story of the relationship of the relationship between Americans and their trees across the entire span of the nation’s history.

As symbols of liberty, community, and civilization, trees are perhaps the loudest silent figures in America’s complicated history. Without trees, there would have been no cities, ships, railroads, stockyards, wagons, barrels, furniture, newspapers, rifles, or firewood.

In an entertaining and informative presentation, Rutkow re-conceives America’s historical relationship with the trees and forests that shaped the development of the nation.

Rutkow is renowned as a “promising young historian” and a graduate of Yale University and Harvard Law School.  He has worked as a lawyer on environmental and corporate issues and currently splits his time between New York City and New Haven, Conn., where he is pursuing a doctorate in American history at Yale.  “American Canopy” is his first book.